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Families transitioning their babies from the NICU to home face overwhelming challenges due to limited post-discharge support, often feeling ill-equipped to manage their baby’s needs without immediate access to healthcare professionals. There is currently a gap between the intensive care available to neonates after surgery in the hospital and the minimal support available to parent caregivers after discharge, which is very stressful for parents to navigate. While NICU discharge typically includes basic in-hospital education and printed resources, these materials can be difficult to retain, generalized rather than personalized, and are often inadequate in addressing the diverse needs and concerns of families in this high-stress period (McNeil, 2023). According to Dr. Deborah McNeil of AHS’ Maternal, Newborn, Child and Youth Strategic Clinical Network, caring for a preterm baby both in-hospital and at home “requires extensive support over time” (Alberta Health Services, 2023).

In Alberta, NICUs are currently operating at 95-103% capacity, which makes it challenging for staff to allocate the necessary time to prepare each family fully for discharge (Lee, 2024). This gap in support often leads to increased parental anxiety, confusion, and even isolation, which in turn can contribute to a higher likelihood of emergency room visits after discharge. Studies indicate that comprehensive discharge support can reduce emergency visits by up to 26% (Alberta Health Services, 2023). Without effective guidance, parents may struggle with crucial health-related activities, such as feeding, tracking weight gain, or recognizing early warning signs, often resorting to non-credible sources like internet searches or informal advice that can compromise infant health (Frey et al., 2022).

For rural families, who may be further isolated from specialized healthcare, this need for reliable, accessible information is even more pressing. Without support, parents may delay care due to uncertainty or seek emergency services for questions better suited to primary care (Hannan et al., 2020). In a healthcare system already stretched thin, these unnecessary visits increase costs, wait times, and healthcare provider burnout, with nearly half of all pediatric readmissions involving infants less than one year old, and costs per readmission reaching $5,087 to $11,341 USD (Hannan et al., 2020).