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Theme 3: Data Access and Connectivity
Healthcare Data Sharing and Management: Implementation of Distributive Machine Learning Technology and Blockchain Technology
What if your health data worked for you?
Lead
Steve Drew
Co-lead
Additional Contributors
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THE CHALLENGE
Patients currently have limited control over their own health data, relying entirely on Alberta Health Services to manage and protect it. Centralized storage of sensitive information increases the risk of breaches and cyberattacks, while healthcare data is often siloed across systems, limiting access and preventing collaborative research that could improve population health. Patients also worry about how their data is used and shared without explicit consent, creating distrust and highlighting the need for more secure, accessible, and patient-centered data management solutions.
THE CHALLENGE
Patients currently have limited control over their own health data, relying entirely on Alberta Health Services to manage and protect it. Centralized storage of sensitive information increases the risk of breaches and cyberattacks, while healthcare data is often siloed across systems, limiting access and preventing collaborative research that could improve population health. Patients also worry about how their data is used and shared without explicit consent, creating distrust and highlighting the need for more secure, accessible, and patient-centered data management solutions.
THE INNOVATION
Innovation Overview Heading
HOW IT WORKS
HOW IT WORKS
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[Innovation Overview] This project focuses on understanding and addressing the technological acceptance barriers among older adults in Central Alberta. By comparing the usage and attitudes of those living independently, with partners, or in care facilities, the initiative identifies gaps and opportunities to design more inclusive, user-friendly digital health solutions.
Surveys and in-depth interviews gather insights into older adults’ experiences with existing eHealth and mHealth platforms, with a focus on their potential for improving healthcare access and supporting healthy aging.
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HOW IT WORKS
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THE INNOVATION
This concept explores alternate ways to store healthcare data, aimed at improving both data security and accessibility for collaborative research while addressing patient privacy and control over their information.
HOW IT WORKS
This concept is in an exploratory phase, investigating ways to decentralize health data storage and improve secure access. It explores methods for sharing data that prioritize patient privacy and consent, giving patients greater control while enabling safer, more collaborative use of health information.
THE BENEFITS
For Users
For Patients: Increased control and autonomy over personal health data, fostering trust in healthcare practices.
For Researchers: Improved access to healthcare data, enabling collaborative research and new insights into population health trends.
For The System
Enhanced Security: Decentralized data storage may reduce risks associated with centralized systems and lower vulnerability to cyber threats.
Collaboration and Insights: Accessible, ethically-managed health data supports cross-institutional collaboration, leading to broader insights and advancements in healthcare.
Increased Trust: Addressing patient privacy concerns and data transparency could help rebuild trust in healthcare data management practices.
THE BENEFITS
For Users
For Patients: Increased control and autonomy over personal health data, fostering trust in healthcare practices.
For Researchers: Improved access to healthcare data, enabling collaborative research and new insights into population health trends.
For The System
Enhanced Security: Decentralized data storage may reduce risks associated with centralized systems and lower vulnerability to cyber threats.
Collaboration and Insights: Accessible, ethically-managed health data supports cross-institutional collaboration, leading to broader insights and advancements in healthcare.
Increased Trust: Addressing patient privacy concerns and data transparency could help rebuild trust in healthcare data management practices.
Ready to Keep Exploring?
If you’d like to learn more or connect about Healthcare Data Sharing and Management, reach out to Steve Drew, Project Lead, at:
Get Involved
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View other projects and explore the Health Everywhere Portfolio to see how local innovations are transforming care across the province.
Explore the Health Everywhere Portfolio to see how local innovations are solving real-world challenges and shaping the future of care across the province.
ABOUT
The Health Everywhere Hub portfolio map showcases academic-led projects tackling real healthcare challenges across Alberta. By highlighting shared goals and commonalities, we hope to spark collaboration and amplify impact across the system.
It’s more than a list of projects - this evolving collection shows what’s possible when partnerships, bold ideas, and real-world testing come together.